My Papa and FTD My granddaughter, Allison (age 7), loves to write stories. Click on the title above to read the story she wrote about Rich, my husband and her Papa, who struggles with Frontotemporal Degeneration. …
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LIVING WITH DYING
Rich shares a common diagnosis with the man in the linked article below, Howard Glick. They have become friends. Howard's attitude and resilience have already begun to help Rich take a new look at his own disease, Frontotemporal Degeneration. It is difficult for patients with FTD, and their …
SOMETHING THAT WORKS?
Last night Rich played music with some friends. Bob and John have been asking him to come over for their jam sessions for the past year or so. Rich is a drummer and sometimes the rhythms speak to his brain and calm him. Sometimes he feels a massive sense of sensory overload and cannot drum. Often …